Joel Yanofsky is the author of Bad Animals: A Father’s Accidental Education in Autism.
We figured we were all set. The fellow at the music store near our house assured my wife Cynthia that someone on staff could give my then 12-year-old son, Jonah, guitar lessons. But when she added that Jonah has special needs, he quickly retracted the offer. “We don’t do that,” he said. There was nothing particularly new about this response. Jonah has been disinvited to more than his fair share of parties and had play dates cancelled at the last minute with lame excuses. It doesn’t take long, as the parent of a child with special needs, autism in Jonah’s case, to internalize the word “no.” You’re continually coming to terms with the things your child will probably miss out on. Things other parents take for granted: like finding your child a guitar teacher.Meanwhile, that “no” inside you thickens like a callus. Still, when the rejection comes from outside, especially from someone who doesn’t know your child, the hurt is mixed with an element of surprise. The sting feels fresh all over again.
Of course, the word “yes,” when you do hear it, also comes as a surprise and is all the more gratifying for it. We’d thought about sending Jonah to summer sleep-away camp for a few years, but with no real success. Then, last year, we met Josh Pepin, the director of the Montreal chapter of Camp B’nai Brith and that all changed. Jonah spent a week at the CBB sleep-away camp, an hour’s drive north of Montreal, and the experience was so good, he intends to return this summer for two weeks.
To hear Pepin tell it, his accepting attitude is just part of the camp’s longstanding tradition of diversity, of integrating all kinds of kids. “If you look at the mission of CBB, our special needs program fits it perfectly,” says Pepin, a big, gregarious man in his thirties, who you can’t imagine saying no to anyone, “Our idea is that kids, no matter their background, or where they come from, what language they speak, what socioeconomic background they come from or how they function, deserve a summer camping experience. I’m no professional in the special needs milieu, but I know we have to keep integrating special needs kids. Not just for them but for all our campers and our staff. Kids like Jonah are such a beautiful part of our camp.”
Pepin never went to sleep away camp himself, not as a camper – “I’m a mama’s boy,” he confesses – but when he was 18, he lost a bet with a friend and ended up as a counselor at CBB. He continued to work there summers for a decade, met his best friends, and also his wife there. After taking on a few other jobs in Montreal’s Jewish community, he came back to CBB as director in 2010. Along with the emphasis on diversity at CBB, Jewish identity is paramount for Pepin. “That’s why we exist,” Pepin says, “to offer kids opportunities that they may not otherwise have if they don’t go to Jewish day schools or belong to a synagogue. As camp director, I consider myself an informal educator. And I have an opportunity, here, to shape young Jewish minds and identities.”
He also gets the chance to say “yes” a lot more than “no.” For which my family is grateful.
Incidentally, we found a guitar teacher for Jonah. He also turned out to be Jonah’s shadow at CBB last summer. I’ll be writing more about him and about the importance of shadows in an upcoming blog.